Category Archives: grieving

Swedish Death Cleaning

I first heard about Swedish death cleaning when Margareta Magnusson’s book The Gentle Art of Swedish Death Cleaning came out in 2018. I have always disliked clutter and felt better when my living spaces feel ordered, and the concept of death cleaning—getting rid of what you don’t need while you’re still alive so your loved ones don’t have to do it after you die—felt like a cooler, trendier way to talk about my appreciation for being organized. Eyes glaze over when I say, “I love organizing!” but when I say, “I’m into Swedish death cleaning,” people perk up with morbid curiosity. 

The marketing copy for Magnusson’s book describes Swedish death cleaning as “A charming, practical, and unsentimental approach to putting a home in order while reflecting on the tiny joys that make up a long life.” I don’t know about whether it’s charming, but it is unsentimental in that it dispenses with the emotion that often drives me to hold onto things I don’t really need or even want. I often hold onto things out of foolish optimism—for example, I’ll think, “I don’t have time to read this interesting looking book now, but I’m optimistic that I will during the summer.” By the time summer arrives, I have a stack of 20+ books to read, and even under the best of circumstances, I may actually read half of those. I’ve often joked when putting leftovers in the fridge, “I can throw this out now or let it sit in the fridge for two weeks and then throw it out.“ Adopting the philosophy of Swedish death cleaning means throwing it out or finding another home for something now rather than in two weeks. It means facing the reality that I will NOT be able to read all the books I want to over the summer and either not buying them “in preparation” for summer or giving them away when they are gifted to me.  

The real practicality of it became salient when my husband died and I had to go through all his things. He was not much of a packrat, so he had less to go through than many people his age, 61, might have. He left behind clothing, shoes, a few books that carried sentimental value, tools, motorcycle stuff, rafting/camping stuff, art/décor, minimal papers (blueprints from jobs he worked on, instruction manuals), electronics, knife sharpening stuff, just a few photos and mementos. Even with Tom’s fairly minimalist ways, going through his things after his death was tough. I was brought to tears by an old pair of reading glasses and a keychain that I suspected had sentimental value to him even though I didn’t know why. I find myself holding onto those items because I feel I “should.” I wonder if the reading glasses he held onto were special to him—or did he just not ever get around to giving them away? Thinking about my daughter and stepson eventually trying to decide what to do with the mysterious reading glasses and keychain they find in my stuff when I die helps me recognize that getting rid of those things now makes sense. 

Swedish death cleaning serves several purposes: 

  1. It relieves survivors of the guilt of getting rid of things. I grew up in a family that dubbed everything any of our ancestors touched “family heirlooms” and my sister and I lugged around many broken and meaningless family heirlooms for decades. It was a relief when I finally realized some of the family heirlooms were just things my father didn’t have the heart to throw out when his own parents and wife died. That realization helps me realize I really do need to get rid of Tom’s old reading glasses and keychain—or make an effort to learn the stories behind them and preserve them as meaningful family heirlooms. 
  2. It creates a tidier, more spacious working and living environment. A towering pile of books I mean to read makes me feel a touch of guilt every time I see it, so instead of having a “to be read” pile, I treat books I haven’t read yet as decor items and put them where they look good. While I am vehemently against the whole “books as nothing but decor” trend, I am even more against feeling bad about not having read a quantity of books in a summer no one could read in five years. Having the books serve a purpose, even if it’s just lookin’ purdy, makes me feel more peaceful and in harmony in my living space and campus office (yes, there were “to be read” piles at work and at home). 
  3. When I die, my daughter and stepson will have less to deal with. When someone dies, going through their belongings and deciding what to do with the clothing, the books, the mementos—it’s tricky. It’s not simply a matter of packing things up for Goodwill. Without necessarily knowing the providence of each item and its meaning to the dead person, it becomes an exercise in trying to read the mind of someone who’s not around to provide insight. Is it just a T-shirt or is it a souvenir from a trip that changed their life? Is it a book that was meaningful to them or one that they never even read? Better to get rid of the things I don’t love now and spare them the emotional detective work later. 
  4. It makes the finitude of life more tangible. “Finitude of life” is a phrase I got from Oliver Burkeman’s amazing book 4000 Weeks, which is marketed as a time management book but is actually a philosophical treatise on the reality that we are all going to die, no matter how cleverly we hack our time. Thinking about my own death isn’t nearly as upsetting as you might think. I’ve always marveled at the light, floaty feeling I get in shavasana, the yoga pose whose name translates from the Sanskrit as “corpse pose.” Acknowledging that I just won’t live long enough to read all the books, travel to all the places, and do all the things actually relieves me of the pressure to always be ticking something off my list. Earlier this week, I recycled four issues of a magazine I love because I realized I was not ever going to have time to read them. It was the equivalent of throwing out the leftovers that will never be eaten, bypassing the time consuming steps of packing them into Tupperware and rearranging the fridge to accommodate them. Once the magazines were in the recycling bin, I was immediately relieved. No more guilt about not reading those issues! 

The concept can be applied to much more than just material stuff. People who are cluttering my life, beliefs that don’t serve me—they can all go. I’ll write more about those advanced Swedish death cleaning moves in a future post. 

It turns out I am living life pretty well

I’ve seen my grief therapist almost every week for nine months now. She’s asked me periodically if I’m feeling any anger and my answer has always been no. I’ve felt profound sadness, disbelief, and fear. I’ve felt some frustration and irritation, but nothing I would call anger.

Until this week. Anger arrived on Wednesday. I noticed it creeping up on me the day before when an email chain I was on suddenly seemed outlandishly stupid to me and I sent a pissy response. The anger simmered at a low level, but I could ignore it easily enough. Then on Wednesday, I felt the anger building up in intensity, starting in my stomach, moving up to a pressure in my chest and culminating in a fuming, throbbing headache. I was so angry that I ended my class 15 minutes early because I couldn’t think straight. I don’t think I’ve ever ended a class 15 minutes early in my entire career. That’s how blinding my anger was.

I will post something about the anger in the coming weeks, after I have some distance from it. Today I want to talk about how struggling with the big emotions I’ve been feeling since my husband’s stroke and then a year later, his death, often make me feel unable to participate much in life. I don’t keep up on the news, I don’t clean my house, I nap between meetings—in short, I take a laissez faire attitude toward most everything. The story I tell myself then is that I’m doing nothing, letting life pass me by.

This week, when I started telling myself that, I decided as an experiment to write down the things I have done since my husband died, and gosh, it turns out that I haven’t exactly done nothing:

  • I got out of bed and put on big girl clothes, including an actual bra, almost every single day. There have been many days in which I napped for most of the day, but I did it in a complete outfit and on the couch, so even on those days, I can claim that I got out of bed and got dressed.
  • I cooked real food at least once a week. There are lots of days when I just have no appetite and no energy to cook, but I have managed to make myself a homemade meal at least once a week and often more than that.
  • I took good care of myself. I worked out and journaled nearly every single day. I made doctor and dentist appointments I had put off while being Tom’s caregiver. I got massages. I met with a grief therapist nearly every week. I attended ten widow support group meetings.  
  • I walked the dogs every day. Some of the walks were on the short side, just little maintenance walks, but most were good walks, and we often stopped at the bench that commemorates Tom. Sometimes I even played with the dogs on their walks.
  • I spent quality time with my daughter, my sister, my nephew, my mother-in-law and her husband, my brother-in-law and his wife, my stepson and his partner, and several good friends.
  • I finished and sent out two memoir essays. One has been accepted for publication and I haven’t heard back about the other one. Relatedly, I participated in a weeklong online writing retreat, five weekend DIY writing retreats, and a four-week online writing course; I attended and participated in 12 online writing workshops; and I joined a writing group that meets every three weeks and have participated in three meetings.
  • I planned a celebration of Tom’s life that I think captured the essence of who he was and why he is so deeply missed. I also had a bench commemorated to him at the park near our house and scattered some of his ashes in Oregon, one of his favorite places.
  • I completed the probate process with/for/on Tom’s will. (I have no idea what preposition to use there, which shows how little I understand legalese.)
  • I had and recovered from major surgery.
  • I prepared for and won an appeal of my health insurance company’s denial of a $42,000 claim related to Tom’s stroke. When the claim was first denied, I thought the insurance company had just made a mistake, but then my first appeal was also denied and I began to worry. I was certain I would need to hire an attorney, but I handled the second-level appeal myself, which was a ton of work.
  • I took four trips by myself and made plans to go to Europe this summer by myself.  
  • I bought original artwork at an arts festival. The piece I bought makes me smile every day.
  • I attended and participated in Buddhist meetings almost every week.
  • I read five books and am almost done with a sixth.
  • I watched the entirety of Schitt’s Creek.
  • I filed my taxes.
  • I remembered birthdays, anniversaries, and other important dates of loved ones.
  • I blogged almost every week.

Even at work, where I have significantly underperformed,

  • I applied for and was granted a sabbatical for the spring 2023 semester.
  • I revised and resubmitted an article that will be published this summer.
  • I collaborated with two colleagues on an edited collection of scholarly essays.  
  • I attended my first conference since the pandemic began.
  • I formed a committee to explore creating an interdisciplinary disabilities studies minor.

This list helps me see that the story I tell myself about being so sapped by grief that I can’t do anything is just not accurate. It is true that I haven’t kept up with the news or cleaned my house. But look at what I have done! I certainly don’t want to imply that a long list indicates a life well-lived, but I do frankly find value in every single item on this list. It actually is, for me, indicative of a life being well-lived, not because of the number of items on it but because every item on it is aligned with my values.

I suspect many of us can be pretty hard on ourselves when we are in the throes of emotional turmoil. I humbly suggest that the next time you feel like you’re doing nothing with your life, you make a list of what you are doing. You might be surprised by what it reveals.

Peer Mentoring Widows

In the early days after my husband’s death, I was hungry to talk to other widows close to my age. I had just turned 52 when Tom died and off the top of my head, I could only think of one other person I knew who was widowed around the same age.

That person was a Facebook friend, a professional acquaintance I didn’t know well at all but I was aware from his Facebook posts that he’d been widowed around the beginning of the pandemic. I messaged him through Facebook and he responded immediately. We met for a cup of coffee and he told me about his experience of being a youngish widower. It made me feel less alone and freakish to sit with someone else who had been through the experience of losing their partner at a youngish age. It reassured me that people our age could assemble a meaningful life after losing the love of their life.

A few days later, my dog walker put me in touch with a friend of hers about my age who had been widowed for a few years. That other widow became a lifeline for me. We met for coffee, went for walks together, and texted regularly. She was able to commiserate with me in a way that only another youngish widow could. Being further along in the experience of being a widow, she was also able to offer guidance about how I might deal with upcoming milestones. She helped me feel normal when I found myself completely unexcited about upcoming holidays or angry about going through the many post-partner death bureaucratic requirements.

I also had two neighbors, one who was widowed very young and another who was widowed when she was a little older than me, come by to express condolences and remind me that they understood. Although I didn’t talk extensively with either of them, knowing they were nearby and open to talking to me was a constant reassurance. Every time I saw them in the neighborhood, it was proof that people survive the turmoil and upheaval of being widowed.

The widow friend my dog walker connected me to told me about widow support groups on Facebook. There seem to be hundreds of them, some focused on widows in specific geographic areas, some devoted to widows of particular religious affiliations, and others organized around interests or simply living with loss. I immediately joined widow groups oriented toward being in Colorado, travel, and gallows humor, as well as a few more open-ended widow groups. While I am not an active poster in any of these groups, reading the posts of others gives me perspective and reminds me that there are an infinite number of ways to experience and respond to grief—and at the same time, there are some constants: it absolutely sucks, some people in your life won’t be supportive, some people will be surprisingly supportive, pets usually help, and grief isn’t linera.

I also devoured memoirs by widows, starting with Joan Didion’s The Year of Magical Thinking and Abigail Thomas’s What Comes Next and How to Like It. Didion’s memoir helped me understand some of the weird memory gaps I had in the early days as normal. What I appreciated most about Thomas’s memoir was the grim humor. (I’ve always gravitated toward dark humor, and it feels to me like being widowed offers some fantastic opportunities for it. While death isn’t funny, it is kind of hilarious that we act like death isn’t natural. What’s more natural than death?)

The experience of being widowed is disorienting and knowing others who have gone through the experience has helped orient me to this strange new world, as has being able to read about or hear about the experiences of others.

I’m now 9 ½ months out and have been widowed long enough that people are starting to reach out to me to orient newer widows. In a weird way, it feels like getting a promotion, like recognition for a job well done. To be sure, I still flounder as much as I did at the beginning, but I do it with the confidence that there is no other way to do this widowing thing. That is one lesson I’ve learned through my conversations with other widowed people, the memoirs I’ve read, and the Facebook groups I’ve lurked on.

I’ve spoken to two newer widows recently, who looked to me for some sense of orientation. It’s like being an ambassador to a place no one wants to be. Nobody gets here on purpose and we arrive with a metric fuckton of baggage, none of which prepares us for the experience. Knowing how much it helped me to have some relatable guides, I feel quite honored to take on the responsibility for others. I am not sure if my ethos as an ambassador is more optimistically grim or grimly optimistic, but in any case, I do feel oddly well-equipped to take on the responsibility of metaphorically holding another widow’s hand through the disorientation.

All the widowed people who made themselves available to me were incredibly generous to me and I sometimes wondered why. Now I get it. When an acquaintance reached out last week and apologetically asked if they could connect me to a newly widowed person they knew, I brushed aside the apology. I was honored to help. I have become a master of saying no to all sorts of requests since Tom’s stroke, but supporting another widow is something I am deeply honored to do. The loss widows feel is not more or less than the loss others feel when someone dies but it can be more disorienting. When you are used to the constant contact a partner offers; consulting them about meals, child or petcare, and all manner of household matters; and assuming their presence in every vision of the future, the loss touches every aspect of your life. Going to the grocery store, opening the mail, being in your home . . . it all triggers big feelings that other widows instinctively understand.

It feels good to be able to put those big feelings to use.

Say “uses a wheelchair” rather than “in a wheelchair”

After his stroke, my husband used a wheelchair to get around. The stroke left him paralyzed on his left side and although he was able to walk a few steps with a lot of effort and sometimes with assistance, getting around in a wheelchair was more efficient and less tiring.

More efficient and less tiring, but still a lot of work. The stroke destroyed a large portion of his brain and so he spent hours every week in physical therapy and then on his own working to retrain his brain to coordinate movements that used to come naturally and to recognize signals from parts of his body his brain had forgotten. To learn to sit upright in the wheelchair, he practiced sitting up straight in front of a mirror, developing core control, noticing when he was slumping to one side and using trial and error to activate the muscles necessary to straighten himself out. Once he was able to sit up straight in the chair, he had to learn how to get from the bed or another surface to the wheelchair, how to transfer his weight in ways that wouldn’t potentially cause a fall or injury, and how to work as a team with a person assisting him (that was usually me). He had to train his brain to remember to check that the chair’s brake was on or off and to make sure his paralyzed left arm wasn’t in a position where it could get tangled in the wheel or smashed against a wall if he rolled too close to it.  

To get around in the wheelchair, he had to learn to maneuver around people, objects, obstacles, pets, cords, divots in the sidewalk, and obstructions that a person with two functional legs could easily negotiate by straddling, hopping, or stepping over. The world is built for ambulation on two legs; successfully using a wheelchair to navigate a world not built for it is much more complicated than walking.

I know how much effort it took Tom to get around with the wheelchair and it makes me wince to hear that immense effort swept aside with a common phrase: “He’s in a wheelchair.”

My husband’s physical and occupational therapists, his doctors and nurses, his family and friends, used this phrase regularly. Every time I heard it, I winced a little. It minimizes everything about the human being sitting in the chair. It puts the focus on the machinery of the chair, perhaps the requirement of a caregiver or attendant. It renders invisible the person sitting in the chair.

Notice how differently these two sentences hit you:

  1. During the last year of his life, my husband was in a wheelchair.
  2. During the last year of his life, my husband used a wheelchair.

In the first sentence, my husband does nothing. There’s actually no action at all in the first sentence. Nobody does anything. It’s boring, implying a boring life and a boring person. If I were to follow this sentence with how much I loved him, you would have been prepared by the first sentence to hear my declaration of love as tinged with pity.

In the second sentence, my husband does something. There is action. He is the boss in that sentence. When I tell you after that sentence that I loved him, you’re much more likely to take it as a love that includes admiration, respect, and passion.

The simple word choice has an effect that ripples out to color the sentences that follow and impact your understanding of everything else I tell you about my husband.

When we say someone “is in a wheelchair,” we’re framing the wheelchair as a state of being, like being in a funk or in a mood. Conversely, when we say someone “uses a wheelchair,” we’re framing the wheelchair as a tool. Because the words we use impact the ways we see the world, a phrase like “in a wheelchair,” which obscures the agency of the person in the wheelchair, is a sneaky way ableism slides unnoticed into our speech and thus our worldview.

“In a wheelchair” implies that someone can’t do anything for themselves, that they are a burden with no agency. It erases all the hard work of navigating a world that is not designed for you. It is easier to leave someone out of an equation when we say they are “in a wheelchair.” On the other hand, “uses a wheelchair” acknowledges that a person can learn a new technology and navigate complex situations. Notice the difference between saying “we can’t hire someone in a wheelchair for this position” versus “we can’t hire someone who uses a wheelchair for this position.” In the first example, no further explanation is needed—of course you can’t hire someone who is a burden with no agency. But the second example does require at least a bit more explanation—why can’t someone who uses a wheelchair do this job?

I admit, I sometimes use this phrase. I’ve heard it so often that it occassionally rolls off my tongue without me even realizing I’ve said the dreaded phrase. But when the person in the wheelchair was the love of my life, whose effort was viscerally apparent to me, I learned how viciously unjust the phrase is. It sweeps aside all the effort, humanity, and agency of the person using the chair.

I know people who use this phrase are, like me, using it unreflectively. They are not issuing judgment on anyone. They mean no harm. They are speaking from a place of sympathy. But the language still does harm, whether the speaker intended it or not.

It’s a pretty easy switch to replace “in a wheelchair” with “uses a wheelchair,” and it will make a difference in how you see people who use wheelchairs.

Another “First” Behind Me

I’m still having trouble with what to call my wedding anniversary now that my husband is dead. In the week leading up to the day, I called it “my anniversary” a few times in conversation, which led to some confusion. One person replied, “Has it been a year already?” thinking it was the anniversary of his death. Another responded, “Why are you so sad about it?” not realizing my husband had died.

When I called it “my wedding anniversary,” someone said, “I didn’t know you were married!” which led to my awkwardly explaining that I was but now I’m widowed.

Calling it my “anniversary with my dead husband” includes enough information to head off the most common areas of confusion but sounds weirdly necromantic.

“The day that would be my wedding anniversary if my husband hadn’t died” avoids necromancy but is wordy.

The day was tough, although punctuated with thoughtful gestures by friends and family, who acknowledged the challenge of the day with grace and generosity. Several friends texted or called. One friend brought me flowers and another delivered pastries. A widowed friend met me at the bench commemorating Tom to listen to me tell stories about him.

I had hoped to get a memorial tattoo that day but could not get an appointment with the artist I want (I did have a consultation with her and am booked to get the tattoo in June). I had also planned to go through Tom’s T-shirts to pick some out for a friend who is going to make a memory quilt out of them, but I curled up on the couch with the dogs instead.

There were some particularly tough moments:

  • While walking one of the dogs, I suddenly burst into sobs, surprising myself, the dog, and the neighbor who was in the yard we were walking past. Nearly nine months into grieving, it doesn’t rattle me much when this happens but I still prefer to keep my loud sobbing out of the streets. I worry that someone will ask me if I’m ok and I’ll feel obligated to explain my situation. One benefit of living in the city is that it’s not that unusual for someone to have an outburst in public, so no one has actually said anything to me when I’ve made a bit of a scene, but I worry a bit about it nonetheless.  
  • I attended two Buddhist meetings via Zoom, which is something Tom and I did together during the last year of his life. Although I attend at least one Buddhist meeting every Sunday morning via Zoom, doing so on our anniversary made seeing myself in a little box on the screen without Tom feel particularly lonely. When he was alive, I loved seeing the two of us next to each other on the screen. I always sat on his right because of his left neglect. I liked being able to feel him next to me and see him on the screen at the same time. He actively participated in the discussion portion of our meetings and I loved hearing what he had to say. I miss it and felt the longing to have that again intensely on our anniversary.

I had foolishly thought that once the day itself was behind me, I would feel fine, but I slept horribly Sunday night and woke up Monday morning feeling wrecked and even more emotional than I had on Sunday. I sobbed my way through work, kept my camera off for remote meetings, and avoided people when possible. Things turned around a bit Monday afternoon, and after getting a good night’s sleep (thank you, Tylenol PM), I woke up feeling optimistic and happy on Tuesday.

Tuesday brought some laughter related to Tom, too. A former employer of his emailed to say they had discovered a paycheck of his from 2019 had never been cashed and they wanted to send me a replacement check. Tom was infamous for losing money, so I had a good laugh about this windfall. I split the money with our kids, which is exactly what Tom would have done. (Actually, Tom would have spent the money multiple times, probably buying a motorcycle, taking me out to dinner, and then giving a bunch to the kids. It would have ended up costing us.)

Lessons learned:

  1. I am proactively going to block out the few days leading up to and after the anniversary on my calendar for next year. I now know that trying to work on those days is probably silly, and luckily, my job affords me the option of taking personal days.
  2. I need to either figure out how to refer to this day or be ok with not having a graceful way to refer to it.
  3. I knew I would want support on this day, so I started letting close friends know in the weeks before it that the day was coming up. They came through with those messages and acts of kindness that I mentioned.

Going through the Motions

This upcoming Sunday is my wedding anniversary. I used to say “our” wedding anniversary but now that doesn’t feel right. “My” anniversary doesn’t feel right, either, but I guess since my husband died, the anniversary is mine now.

Once Tom’s birthday in January passed, I set my sights on our March anniversary. I notice myself doing that—making it past one milestone and immediately steeling myself for the next one. (After this anniversary, the next milestone on my radar is Mother’s Day, which Tom often made a bit of a big deal about despite me arguing every year that it’s a bullshit made-up holiday. He believed firmly in honoring mothers.)

I started feeling heavy sadness last Sunday night. My eyes fell on a framed photo of Tom and me and the kids the day we got married. We had been together two years when we married in 2011. When we got married, Tom was 51, I was 41, his son was 18, and my daughter was 8. I started thinking that none of the people in the photo exist anymore. Tom is dead, the kids are adults now. The kids and I have been changed profoundly by his stroke and death. The photo seemed to capture a moment from some imaginary time I no longer felt connected to. I put the photo in a cabinet, then went to the bedroom and opened the drawer of things that at one time smelled like Tom. They haven’t smelled like him in a long time, but I still think of it as the drawer of things that smell like Tom. I ran my hands over the shirts and a stuffed unicorn (after his stroke, he loved stuffed animals), and then sat on the floor in the closet and listened to voice messages from him. The smells-like-Tom drawer and voice messages always destroy me, so I limit how often I let myself dive into them. This week, there have been no limits.

On Monday I bought myself a big bundle of red tulips to put in a vase on the dining room table. One thing I have learned since Tom’s death is how to be kind to myself.

This week I am just going through the motions at work. I’ve been attending my field’s most important conference online all week, but I haven’t retained a thing. A collaborator gently suggested to me that the work I did on our project this week wasn’t as detail-oriented as it needs to be. I will likely need to spend the first part of next week revisiting the work I did this week.

My plan for Sunday is loose. If I can get an appointment, I’ll get a memorial tattoo. Tom actually hated tattoos, so it’s kind of ironic, but I love tattoos and he’s dead so I figure this decision is all mine. I already have a few small ones on my arms and want this one somewhere else—I’m trying to decide between the left side of my collarbone or the left side of my ribs. (The left side because it’s closer to my heart.) I’m also going to go through Tom’s many T-shirts to pick out 20-25 to give to a friend who is going to make a memory quilt out of them. I’ve been putting that off because I know it will destroy me, but since I know Sunday will already be a tough day, it feels right to just pile it on. I’ll go to the commemorative bench at the park by our house at some point.

I have to force myself right now to lean into the sadness. I want to push it away. I’m tired of being sad, tired of crying, tired of memories that feel painful in their beauty and fullness. This week my sadness feels different. I feel like I can only remember my life with post-stroke Tom well. The photos and memories of pre-stroke Tom, like the wedding day picture, feel almost like someone else’s photos and memories. When I think of wanting my life with Tom back, I think of our post-stroke life. I think of pushing him in his wheelchair around the house while crouching down like a ninja and singing the James Bond theme music for drama and comedic effect. I think of cheering him on during physical therapy as he took a heavily-assisted step with his left leg. I want that life back.

I know this will pass. So much of grieving is just being patient and trusting the process. I wonder how much patience I have left and I remember a conversation Tom and I had after his stroke. He had suffered one of the many, many setbacks in his recovery and he asked me how much more caregiving I had in me. “As much as I need,” I told him. I would have happily been his caregiver for 100 more years.

Today I remind myself that although I feel like I have no more patience left for grieving, I do in fact have as much as I need.

Dreaming about My Husband Who Died

I often write about the challenges of grieving, but one aspect of grieving that has given me many happy moments is dreaming about my husband who died. I didn’t dream about him for nearly two months after he died. I desperately wanted to; I was hungry for every memory, every story, every reminder of him, but the dreams wouldn’t come. Every night as I waited to fall asleep in bed, I thought only about Tom. It seemed impossible to me that those thoughts I fell asleep to wouldn’t work their way into my dreams.

One day I spoke to a friend on the phone who was also grieving. She said she couldn’t stop dreaming about the loved ones she had lost. She told me the dreams about Tom would come and that maybe I wasn’t ready. I woke up the next morning and immediately texted my friend: I had dreamt about Tom!

It was a good one, too, featuring us living in a post-apocalyptic world, squatting in a four-story apartment building and driving an old Sprinter van. For some reason, we were played by actors in the dream—Tom was played by Jeff Bridges (with a 5’ long beard and wearing a long white robe) and I was played by Kyra Sedgwick. I have no idea why we were played by actors, but the casting was great, so I’m not going to belabor it. Tom was post-stroke in the dream, using a wheelchair and relying on me as his caregiver, but there was no stress or anxiety associated to it. The apartment building where we lived was abandoned except for us, but had a functioning, albeit rickety, elevator. Although I haven’t driven in real life in several years, in the dream I was able to drive the van because in the post-apocalyptic world, there was hardly anyone else around and I didn’t have to worry about accidentally running someone down. We were weirdly happy and carefree in the dream, which is not how I’ve ever thought of post-apocalyptia when I’m awake. I remember one particular moment in the dream when Tom’s 5’ long beard separated into tendrils and blew out around his head, reflecting the sunshine so he looked like a saint. I woke up feeling like I had gotten bonus time with him—it was so clearly a dream but it filled me with the kind of peaceful joy we shared together when he was alive.  

It was three months before I had another dream about him, and then I had two within a month. In the first one, he started out using his wheelchair, but at some point during the dream, he stood up on his own, and said, “Hey, babe, check this out.” He was a bit unsteady but not so much that I thought I needed to run over to support him. I said, “Look at you!” and then, in typical Tom fashion, once he got some affirmation, he started showing off: going from crouching to standing, first slowly and then picking up speed. In the dream he was wearing Carharts pants, which he always wore before the stroke but seldom after because I had to dress him and putting Carharts on another person is a serious workout. At one point in the dream, I hugged him, partly to hold him up because he was moving like the Tin Man and it made me nervous, but also because I remembered that he was dead and I wanted to feel his body to see if it was real. He felt lean and strong when I hugged him and I was confused, trying to figure out how I could be calling myself a widow when he was there in front of me showing off his ability to stand.

In the second one that month, we were staying at a hotel made out of rafts on a lake, with each room like a bouncy castle on the water. I was sleeping alone in an inflatable raft room and my room got a leak that made it zip all around the lake as the air whooshed out. I could see Tom, post-stroke,  inside the restaurant, another bouncy castle, chatting with the owner and then seeing that I was in distress. After I got rescued by a hotel employee in a kayak and dropped off at the restaurant, a woman told me it was my fault but I knew she was wrong and Tom would back me up. I felt no insecurity whatsoever, I knew he would have my back. When I went to talk to him, he was strong and sinewy, as always, wearing a tight white shirt that showed off his physique. He was lying on his left side on a booth bench so only his right side, which he could still control, showed. He said, “Hey, babe,” as I walked over to hug him. He was strong and healthy and adjusted to not having access to his left side. It felt like we had established a life post-stroke a lot like the life we had pre-stroke.

A couple weeks later, during an acupuncture session, I dozed off and had a dream that Tom was getting out of a car and into his wheelchair in front of our house and I floated down the ramp to meet him. I didn’t have to make any effort to float down the ramp, and it looked like Tom started out having to make an effort to get from the car to the wheelchair, but when I got to where Tom was, he hugged me with both arms, seeming to have the use of his left side, and then sat down in his wheelchair unassisted. I woke up with a start, overwhelmed by emotion.

A week later, napping on the couch at home, I had nearly the same dream, but this time I felt calm and happy rather than overwhelmed when I woke up. After that, Tom started showing up in many dreams as a side character, usually in his pre-stroke form, and always in a crisp white shirt. When he was alive, he had a knack for wearing white shirts that stayed crisp and spotless, even on camping and rafting trips.

In February, I started having lucid dreams about Tom in which I was aware that I was dreaming and could influence the narrative a bit. I don’t remember the details of the first dream, but I do remember at some point in the dream Tom and his mother told me Tom’s stroke was my fault. The thought hit me hard for a moment and then I realized how ludicrous it was for me to take responsibility for his stroke. At the same time, I realized I was dreaming and that my brain was playing a trick on me. I was searching for some kind of certainty about the cause of his stroke, which has been mostly mysterious. Once I realized it was a dream, I told Tom and his mother that I knew the stroke wasn’t my fault and they nodded and accepted it, and I went from feeling panicky to completely calm.

A couple weeks later, I had another lucid dream. In the dream, pre-stroke Tom and I were camping beside a river. We were in our tent and he was wearing his blue and yellow drysuit. We were laughing about something funny one of us had said when his face started turning into a skull from the jawline up. As soon as I realized what was happening, I said, “Uh uh! You don’t get to show up like that. Not in my dream!” and I pointed to the tent’s opening. Tom looked embarrassed and skulked out. I was sad to see him go—it still feels really special to have him show up in a dream—but could tell the dream was going to turn into a nightmare if I let it keep going in the direction it was headed.

My most recent dream about Tom featured him, post-stroke, waking up in the morning and me, as I did everyday, helping him arrange his limbs so that he could sit up without bending anything in a way that would damage his joints or strain a muscle. He was in good spirits and we joked, enjoying each other’s company. There was very little action in the dream—it was mostly just us laughing and hanging out together while I helped him go from lying in bed to sitting up. That was a process that could take up to half an hour. The infinity sign was embedded in the dream in different ways—as a pattern on the bed sheets, doodled on the envelope of a piece of mail, in the loop of my shoelace. Sun streamed in the windows of our house in the dream in a way it doesn’t in real life. I knew it was a dream in part because of that detail–the shafts of sunlight did not reveal dog hair and dust floating free through the air. I felt capable and loved in the dream, not overwhelmed at all.

I’m happy that the dreams are coming more frequently and that I’ve been able to exert some influence over the narrative when they seem to be turning dark. I was surprised to learn that most grief dreams are positive. Dream researcher Joshua Black says that grief dreams can help people experiencing loss understand “the problem of the loved one being gone in a new way” and help us continue to feel connected to the person who died.

The Emotional Overwhelm of Others’ Grief

One of the surprising gifts of being widowed is that I feel more connected to others who are grieving—and these days, it seems like that’s a really big group. When I learn of someone else’s loss, I immediately soften toward them and feel deep empathy.

Sometimes, though, that deep empathy becomes intense enough to trigger my own grief and I find myself suddenly distraught. This has happened a few times in the past couple of weeks:

  • I was talking to a close friend on the phone whose mother recently died. At one point, my friend mentioned the challenge of getting her father, who has limited mobility, to the graveside for the service. I was already thinking of my friend’s loss; that was compounded with the realization of her father’s loss. I found myself choked up and unable to speak. While she was talking, I went from open, listening friend to devastated widow, from patiently holding space for her grief to completely immersed in mine. It happened so quickly and dramatically that I was momentarily disoriented and had to remind myself where I was and who I was on the phone with.
  • I was catching up with a colleague over coffee. She mentioned that she had lost a sibling years ago and still finds the holidays difficult. My eyes were instantly filled with tears, thinking of the big photo of Tom I had taped to a chair at every holiday dinner I attended so he would not be forgotten. For a few moments, I was physically looking at my colleague, but what I was seeing was the photo of Tom—him holding a giant martini glass with a pitcher’s worth of martinis in it, a smug look on his face. I thought of my colleague facing a similarly monumental loss and perhaps not having the strong support I have had of loved ones welcoming my quirk of taping a picture of Tom to a chair.
  • I was scrolling through social media and saw a friend’s post about his dog’s terminal cancer diagnosis. I thought of the desperate grasping at every moment that’s left my friend would surely feel in his dog’s remaining months, like what I felt after Tom’s stroke. Thinking of the immense comfort I had gotten after Tom’s death from our two dogs, I thought of how my friend’s house would feel oddly empty after his dog’s imminent death. I had to put my phone down and walk away to collect myself.

My practice of leaning into my grief means that I notice these reactions in myself but don’t try to contain them unless, like in the first situation, I feel like it would do some harm for me to let my grief run its course in the moment. In that situation, I needed to be present for my friend, so I shook my head and pushed my own grief aside until our call was done.

In the other instances, I just let my grief express itself. My colleague knew about my husband’s death and didn’t seem to think it was odd at all that I reacted the way I did to her disclosure about her brother. My own tears didn’t derail our conversation and I suspect that just as I felt closer to her knowing of her loss, she probably felt closer to me seeing my vulnerability. In the third situation, I was home with my daughter, and she’s used to seeing me fall apart at random moments now. She and I both have random moments of tears and emotional overwhelm and that’s pretty normal at our house.

In each instance, the grief of another brought my own grief dramatically to the surface, and my own grief allowed me to resonate more deeply with the loss the other person was experiencing. I am grateful for that deeper connection with others.

Being open to the pain of loss again

After my husband died, I realized for the first time that nearly every couple that doesn’t break up is going to see one of them widowed. I knew it abstractedly, of course, before Tom died, but the idea of living through the death of my partner seemed so unlikely and distant that when it did happen, it felt almost unnatural. But there is nothing unnatural about one partner outliving the other. That doesn’t make it suck any less, but it does put into perspective that being widowed is something an awful lot of us will experience, some of us more than once.

After his stroke, when it became clear that he was going to have significant health challenges for the rest of his life, my husband wanted to talk about me surviving him. Even knowing the facts of his medical condition, it seemed like an outlandish possibility to me. He was only 60. We were in love. We laughed and enjoyed the hell out of every day. Even paralyzed, plagued by pain and cognitive issues, he lived fiercely. I couldn’t imagine him ever not living. I evaded the discussion for months but finally he said, “This is important to me. I need to have this conversation.”

He wanted me to find love and happiness with someone after he died. I promised him I would, mostly to end the conversation. Imagining a world without him in it seemed farcical to me. Many days, it still does. Even with the celebration of life done, most of the paperwork done, the estate settling nearly done. Even with most of his clothes given away, the knife-sharpening stuff moved out to the garage, the makeshift bedroom on the main floor dismantled. He is still so present in my thoughts and conversations that it seems absurd sometimes that he’s dead.

“Now that you know how much it hurts to lose your life partner, will you open yourself up to that potential again?”

This question comes up regularly in the widow support groups I’m in. There are always some who say no, they have no interest in ever being vulnerable to that pain again. Others say yes, that vulnerability to another loss is a reasonable risk for the rewards of love. Every widowed person has to answer that question for themselves and there is no right or wrong answer. It’s a very personal decision that can be contingent on the role trauma has played in a person’s life, the circumstances of their partner’s death, their tolerance for emotional pain, and more.

Despite how personal the decision is, many of the folks in my support groups have been told by others what their answer should be. Just as people think they can tell grieving people how long their grief should last, they also sometimes think they can tell us whether or not we should pursue another relationship. Someone suggested to me that falling in love again would “tarnish” the story of my relationship with my husband who died; I gave them a salty response. A couple others have told me what timeline they think would be acceptable for me to find another relationship—I politely informed them it was none of their business. (Well, maybe I wasn’t that polite to one of them.)

For me, the answer to the question is automatic and doesn’t involve a bit of hesitation: hell, yeah! I think the conversation with my husband about my life after his death plays some part in how easily I can answer the question. It is certainly a gift to know not just that he was ok with me finding someone else but that it was a thought that gave him peace near the end of his life. The very fact that he died also inspires me to be open to love again. The harsh demonstration of how suddenly a life can end motivates me every day to wring out every bit of joy I can.

I think I will probably love even bigger in the future than I did with Tom. Part of that is my natural streak for resistance. It’s my way of saying to the universe, “Oh, you thought that would slow me down? Ha!” It’s also a tribute to all I had with Tom—I know what it means to have someone who loves me unconditionally and accepts my love with grace, and damn it, I want it again, but this time with even more cowbell.  

I will go into my next relationship knowing that my partner may well die before me. I imagine that will make me a better partner in some ways than I was for Tom. I think of times I let a petty work situation or insecurity cast a shadow over a dinner or times I kept an argument going longer than was productive. I think my clearer understanding now that one of us is going to outlive the other will help me focus on what matters.

I talked last week about Gil Fronsdal’s idea of letting go into something. For me, letting go of the fear of being widowed again allows me to let go into the possibility of being in love again.

Not Ready for a “Late Husband” Today (but maybe tomorrow)

My first real experience with grief was when my mother died when I was 12. My family was already dysfunctional before that, plus I had undiagnosed depression. With no support network, a family tradition of brushing uncomfortable topics under the rug, and my depression, I expressed my grief through petty crime, passive aggressive behavior, and poor dating choices. When I felt sadness or tears coming on, I angrily pushed them aside. Over time, the sadness stopped coming up and I skipped straight to anger.

Thirty years after my mother died, I finally connected my random surges of anger to unprocessed grief for my mother. I got myself post haste to an excellent therapist who helped me process what I had buried for all those years.

When my husband died, I determined that I would do things differently. I’ve blogged about the two promises I made to myself about how I would handle grieving for him:

  • I will grieve mindfully, which means generously giving myself the time and space to be sad.   
  • Instead of pushing my grief aside, being frustrated with it showing up inconveniently, or being embarrassed about its unexpected appearances, I’ve been trying to practice what Buddhist meditation teacher Doug Kraft calls “three essential moves”: turning toward, relaxing into, and savoring peace

These commitments mean that when I started trying to refer to Tom as my “late husband” last week and noticed how off it felt, I paid attention. I turned toward that feeling and realized I wasn’t ready for that. Saying “late husband” involved consciously editing my thoughts, every time. Every. Time. Not once did it feel organic or comfortable. As I explained in my post last week, I wanted to start referring to him as my “late husband” to avoid the confusion that sometimes comes up in conversation about him being dead, but I’ve decided that I’d rather deal with that confusion than the nagging sense that I’m being inauthentic when I call him my “late husband.” After two days of trying, I acknowledged I wasn’t ready to call Tom anything but my husband. Maybe tomorrow, but not today.

Oddly, I’m totally comfortable saying “my husband died last June”—but calling him my late husband, for whatever reason, is a step I’m not ready for. For me, part of  “turning toward, relaxing into, and savoring peace” means being ok with the contradictions and the part of my reactions that don’t follow logic.

After I decided to let go of the idea of calling him my “late husband,” I had two dreams in which Tom was present but never interacted with me. He just hung around on the periphery of my dream, never even making eye contact with me,  almost like an extra in a film scene who the camera lingers on a little longer than the other extras but never focuses on. It was comforting to feel his presence in that periphery way—it felt like he was letting me know that he knew he couldn’t be with me at the center of my life anymore but that he would still be part of it. And although it makes me very sad to write that sentence, in the dream, I didn’t feel any sadness at all, just savoring peace.

Later, I came across this article by Gil Fronsdal on letting go into something. The idea of letting go into something makes explicit that when we let go of something, we make space for something else. When I got counseling to help me belatedly process my mother’s death, letting go of my anger made space for me to feel 30 years of longing for a mother that had been building up. When I let go of calling Tom my “late husband” to avoid social awkwardness, I made space to accept social awkwardness as part of my grieving process. In the dream, letting go of Tom being at the center of my life makes space for someone or something else to be at the center.